Hmm. Whats to report? Well, skipping aside, the next big thing appears to be scoubie-dou - for those uninitiated when they were at school way back when, its the "art" of knotting plastic strings together to make, well, knotted bits of plastic. Pretty colours though. Hang them off your bag/round your neck etc. You apparently can make animals etc, but have yet to see any emerge. Needless to say, with an impatient 5 year old wanting to do them, I have been making a few myself. And found myself strangely addicted......
Molly had a visit to Kings College Hospital again last week. She is OK but some aspects of her disease are slightly worse. I am not going to go into it to much, suffice to say we are feeling the pressure of waiting and are wondering how long she can manage this disease as well as she is - she is fairly exceptional in the way she is coping. That said, she had lost weight so they upped the concentration of her prescription milk and we have stopped worrying about "meals" - she has such a tiny tummy she can hardly fit anything in (unless we go out for tea - then she manages a whole jumbo sausage to herself!!!). And yes, I really think she has put some weight on. Well I am sure she has.
The new pills are working well and have started today after advice from my mate Kay, to take Soy Lecithin to try and break down a possible fatty liver. Grand weight loss total: 10lb. Yay!
And thats it. Off to Brighton tomorrow for blood tests (long story, last week at Kings was a bit of a cock up with a new doctor and LFTs didn't get done) and a days shopping. Was going Wednesday but no electricity all day tomorrow so thought I might as well go out!
Daisy is getting enrolled (finally!) into Rainbows tomorrow which Iwill go and watch. Then we are going out for dinner, Daddy's treat. That will be GREAT! We haven't been for a very long time.
Ta-Ra!!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment