We no longer have to go to Kings for these mega immunosuppresive drugs! Thank GOD!! I was so worried as they would have had to keep her in isolation and she would have felt so awful.
The bottom line is that its probably not rejection - there was a virus test (for those of you with liver kids, see bottom of post for full explanation!) that the results were missed. When the test was repeated earlier this week the result came back this afternoon "highly infected with CMV". Yow!!! Which means 2 weeks of twice a day I.V. antibiotics but hey, I can live with that, jsut means alot of travelling a day but at least she doesn't have to stay in and...
ITS NOT REJECTION.
Phew.
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My god child had his Kasai a year ago and for the first time his results are worse than the time before. It is so helpful to read your page and get to know a little more about transplants.
ReplyDeleteMy best wishes for your little Molly.
I'll keep my fingers crossed for her as well now.