Molly is poorly AGAIN! Poor little thing - its been constant since last September really. She weighs 2lb LESS than she did this time last year and of course she is taller, so relatively speaking thats a lot more. She was lying on the bed this morning, feeling rotton, and her hip bone was just sticking out.
I hate it.
So we have had Shingles, suspected Meningitis (we think it was a virus - purple legs a go-go!) and the latest was Pleurisy. Thats not to mention infections (ear and uti), viruses and tummy bugs (what she has now).
I just want to claim back the 3 years of super health we had with her. I thought with the pleurisy that would be it, but it seems we picked up a bug in hospital. Shaun first, then me now Molly.
I have been cancelling "things" that I have had booked for this year as I just can't commit - I don't know when I will be around or when I will be looking after Molly.
And another rant Molly looks to be going down 2 bands for her Disability Allowance- I don't mind that, she is much better than she was. However, apparently I won't get Carers Allowance. I have tried to explain that I couldn't possibly have a full time job - Molly hasn't had a full week at school this winter so how could I hold a job down? But they can't count time spent in hospital etc etc - basically it all boils down to how much more care she needs than a "normal" 5 year old in each illness/situation. But they CAN'T take into consideration that she is ill far more often than a "normal" 5 year old.
Hey ho. Its a very strange world we live in. I think I will injure my back, preventing me from work, and claim DLA. That way I can afford to care for Molly.
Gah.
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